Everyone always asks me: How did a urologist end up being a YA writer?
The better question to ask might be why an aspiring writer decided to become a doctor, but I won’t bore you with that, as I’ve already blogged about it a bit. Instead, I’d like to talk about the patient who got this urologist off her sorry butt and back to writing.
My debut novel, NONE OF THE ABOVE (Balzer & Bray, Spring 2015) is a YA contemporary story pitched as MIDDLESEX meets MEAN GIRLS. It’s about a girl who finds out mid-way through her senior year that she’s intersex – what in the old days they’d call a hermaphrodite – meaning that she has both female and male physical characteristics. And it was inspired by a patient I treated during residency.
I still remember my attending surgeon’s excitement when I walked into the OR; he couldn’t wait to tell me about our case. Our patient, he explained, had Androgen Insensitivity Syndrome (AIS). Briefly, AIS is one of those classic “zebras” that you learn about in medical school but never expect to treat in real life. It’s a genetic condition where individuals have XY chromosomes and develop male internal organs, but the cells in their body don’t respond to testosterone so they look like females on the outside.
Like Kristin, the main character in NONE OF THE ABOVE, my patient found out about her condition when she never got her period and was found to have hernias with gonads in them. I participated in the operation to remove her gonads and also saw her postoperatively, at which time I referred her to the AIS support group, which my senior doctors hadn’t even mentioned to her. She came from a very poor and disadvantaged background, and I think I was the first person to really talk to her about her condition and what to expect in the future. During my examination, she was pretty stoic – uninterested, almost. I never met her family, so I didn’t know whether her parents were involved with her health care and I worried about her support system.
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❤ I think I'd totally be haunted by wondering how she eventually fared too. Love that you got to express that through a book I can't wait to read!
Your story sounds so interesting. I’ve always wondered how those intersex students of mine fared in their lives. First kiss. First love…